Publication of Clinical Data
It is difficult and debatable, raising significant ethical, legal, and practical issues to determine if all clinical data should be made public. On the one hand, there are compelling arguments in favour of opening up clinical data. Sharing clinical data can promote greater transparency, hasten scientific progress, and help individuals make more informed healthcare decisions. On the other hand, it is necessary to handle important privacy, confidentiality, and security issues. Additionally, there is a chance that making all healthcare data accessible could result in its abuse or incorrect interpretation.
Examples of publicly available patient data used to improve care and healthcare requirements include clinical trials and observational studies. Protocols and rules have been established to secure all parties involved in trials and assure their protection. Based on its extensive knowledge and experience, Congress has developed regulations to safeguard study participants. Now, it is the responsibility of every clinical investigator to watch after and guarantee the security of every participant. For the research, these safety measures are crucial (National Institute on Aging, 2017).
The Centers for Cancer Genomics (CCG) is another instance of how public patient data is used to improve care. The National Cancer Institute (NCI) founded the Center for Cancer Genomics (CCG) after realizing the potential of cancer genomics. The data is normally made public after CCG researchers have published a first summary and evaluation. Most of the genomic data produced by CCG activities are hosted via the Genomic Data Commons (GDC). n.d. (National Cancer Institute).
Public patient data may be a great tool for enhancing care nationwide when properly anonymized and integrated. It enables researchers, medical professionals, and policymakers to identify patterns, provide specialized therapies, and promote evidence-based decision-making to raise the standard of care and public health.
References
National Cancer Institute. (n.d.). About The Center for Cancer Genomics (CCG). https://www.cancer.gov/ccg/about
National Institute on Aging. (2017, May 17). Clinical Trials: Benefits, Risks, and Safety. https://www.nia.nih.gov/health/clinical-trials-benefits-risks-and-safety
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Question 
Should all clinical data be made available to the public?
Publication of Clinical Data
Why or why not? Research and provide examples of how patient data that has been made public has been used. Defend your answer by citing 2 to 3 reputable sources.
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